add another -ist to the list

so meimei got a thyroid test last week and the results came back with slightly elevated levels of thyroid stimulating hormone which is an indication of hypothyroidism. symptoms include decreased growth rate, weight gain, constipation, lethargy, decreased muscle tone and dry skin.
thyroid issues are common with children with Down Syndrome.

so we are adding endocrinologist to our list of pediatric specialists...

geneticist
cardiologist
ENT-ist
ophthalmologist
audiologist

Tribeca Family Festival

Joey-isms

NO! that's MY meimei.

I want too much cookies.

No mommy, YOU go play Joey baobao meimei.

I ALREADY said please.

I told Joey, "You're really good on the scooter." Joey replied, "I know"

happy 8 years

cause for celebration

Meimei can now roll from back to belly. can't leave her alone on the bed or couch anymore. i put foam mats down so she can roll wherever she wants to.

it's amazing the progress she's made just within the past month. she's moving so much more, grabbing her toes, rotating, reaching for toys, doing swimming position on her belly. we're still working on the sitting, we'll get there soon... she's been working hard building her muscle strength.

hooray for PT!

hooray for increases

with all the rumors of Early Intervention cuts, meimei got an increase in her services! so now she receives:

- 3x30 min of PT weekly
- 3x30 min of Feeding and Speech weekly
- 1x 60 min of Special Instruction weekly
- 2x 60 min of Social Work Services monthly

we are very thankful for her therapists, she has an awesome team. we love them!

GO TEAM MAKAYLA!

90 percent

When I was pregnant with makayla i learned that studies show 85 percent to 90 percent of women with a prenatal diagnosis of Down syndrome choose to terminate their pregnancies.

how could that be????